The Prostate Cancer Outcomes  Registry – New Zealand (PCOR-NZ) focuses on the collection and reporting of data from thousands of men across New Zealand, to better understand their prostate cancer journey and how it can be improved.

There are no costs associated with participating in PCOR-NZ. There is no payment for participating. 

Participants do not receive any direct benefit from their involvement in PCOR-NZ; however men with prostate cancer in the future may benefit from healthcare improvements produced by the research outputs, clinical audits  and quality improvement projects coming  out of the Registry.

PCOR-NZ is  funded by the Movember Foundation NZ, and is managed by CHOMNZ - a charitable trust,  set up by urology and radiation oncology clinicians wanting to improve outcomes for men diagnosed and treated for prostate cancer in NZ. 

The Registry aims to collect health information for all people diagnosed with prostate cancer in New Zealand. The Registry is notified of a new positive diagnosis either directly from the participating hospital/clinic or via the NZ Cancer Registry (NZCR). If the newly diagnosed person is eligible, they will receive a letter about thie  registry and their involvement from PCOR-NZ. The decision to participate in PCOR-NZ is voluntary. If the person agrees to participate, they do not need to do anything. If the person prefers not to participate, they will need to let us know that they wish to ‘opt out’ of the registry. People can opt out of the Registry at any time, by calling the free call number 0800 008 436 or emailing pcornz@chomnz.org.nz. If the person does not opt out, their identifiable data may be provided back to their treating clinician or hospital for quality assurance or care purposes.  Participants de-identified data may be used for research purposes only if approved by the PCOR-NZ Steering Committee according to the ‘PCOR-NZ Data Release Policy’.

PCOR-NZ has been reviewed and approved by the Health and Disability Ethics Committee and at all participating Health Institutions across New Zealand. The research conforms to the National

Ethical Standards for Health and Disability Research and Quality Improvement, and the NZ Privacy Act 2020. 

The Registry collects demographic, diagnosis and treatment information about a person’s prostate cancer from their clinical records. We may also send participants quality-of-life questionnaires to complete either before and/or after their treatment. All data is safeguarded by Australia and New Zealand privacy and confidentiality laws. The Registry security is maintained using encryption of data and is housed in an ISO 27001 certified environment. The registry database is accessed only by Registry personnel.